ENS questionnaire |
This study aims to increase the knowledge of ENS through the recording of patients' direct experience concerning the onset, symptomatology, effects and treatment experience, as well as to collect preliminary information on the broader impact of this syndrome.
In the following sections, you will be asked to provide your information and input on various aspects including:
- Anagraphical data
- Filling of validated questionnaire currently used to make the diagnosis of ENS
- Clinical data
- Exames and diagnostic tests
- Your description of the effects of any treatment you personally underwent
- Additional information of ENS impact on personal and social life
Your contribution is key: collecting information from a broad cohort of patients will be extremely valuable for increasing awareness, improving diagnosis, and emphasizing the urgency for new treatments for this medical condition! Indeed, the results of this study will be organized and published in international scientific articles, as well as discussed in international conferences. Your personal data will be anonymized and therefore cannot be traced back to you personally.
We thank you for your collaboration in completing the questionnaire and encourage you to share it as widely as possible among patients with ENS. Together, we can make significant progresses in addressing ENS!
Note: completing the questionnaire will take approximately 30-40 minutes. The questionnaire must be filled in its entirety, but it can be finished in different sessions by saving and submitting it later.
If you believe it may be helpful, we encourage you to involve a family member, friend, or healthcare provider while completing the questionnaire. Should you require clarification on any questions or need assistance during the questionnaire, please feel free to contact us at the following email address ensquestionnaire@gmail.com, and we will be happy to assist you.
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